Sorry I have not updated about her surgery, just so much going on.
I spoke to the actual surgeon last Thursday. He was not supposed to call me back till this week, so I was impressed. He took his time on the phone with me, I really liked his demeanor. So, he says she is a great candidate for the surgery. He is only scheduled out 1 month, but we have decided against doing the surgery that soon. She needs more time to build trust and just enjoy her new life. Not only that but she will have casts on her legs for 6 weeks after, which would mean no more pool for the summer. So as of right now we think we are going to schedule for early September. This will give her time to adjust more, start school, etc... The casts will be from a little below her knees, past her ankle half way down her foot. She will be able to walk in them, and will be able to walk within 1-2 days after surgery. She will be given tylenol with Codeine for pain for up to a week. The average for the pain meds seems to be 2-3 days. Amazing! It is outpatient. We would arrive the day before surgery have a consult with the doctor, surgery the next day, stay in a hotel that night, then come home the next day. I belong to a couple CP groups online. It seems the kids do very well while in the casts. But once the casts come off some take awhile to adjust to their new range of motion, they have heel pain due to the fact they have never walked on their heels before and the bones in their feet rearrange. Some children take this harder than others. Anastasia seems rather sensitive about any booboo, so are preparing for this to be a hard time for her. This is one of the reasons we will not be waiting for the holiday school breaks for her to have her surgery. Gary is due to deploy in January, so I want him here for the hard parts, to help me out, especially physically. The timing should work out well, please keep this situation in your prayers. She freaks out about the tan lines on her feet because she thinks they are booboos.
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